You can’t rain on my parade! By Rose Fernandez

CYSTIC FIBROSIS FOUNDATION GIBRALTAR INAUGURATED BY CHIEF MINISTER

Not many people will remember when this year’s first day of torrential rain was; but I do!
I recall waking up on the morning of the 26th of September and looking out of my window, in disbelief, at what looked like a waterfall running down my windows.
Why do I recall this you may ask? Well, it just happened to be the day of the Cystic Fibrosis Foundation Gibraltar’s launch party, which we had been planning every detail of for over 3 months.
The launch was planned to take place outside, with a BBQ and a summer’s evening feel to it;
but plans has to be changed just hours before the event.
Despite the short notice, we all pulled together and the inside venue ended up looking great decked out in purple & with educational posters everywhere , everything fell in to place perfectly and it all turned out better than we could have ever wished for. We believe that the rain was a blessing in disguise; the party was meant to take place inside after all.
The Cystic Fibrosis Foundation Gibraltar was officially inaugurated by our Chief Minister, The Honourable Fabian Picardo in what was a very well-attended party; with the attendees including
The Hon. John Cortes, The Hon. Samantha Sacramento, The Hon. Paul Balban and Opposition Minister Isobel Ellul-Hammond amongst other friends, family, medical professionals and the local press.

The launch had a family feeling to it, where adults and children alike experienced a night of enjoyment, entertainment and a medley of emotions.
The Chief Minister wore a purple tie in support of the charity and stated: ‘’ A charity like Cystic Fibrosis is a welcomed step in the right direction, it is something that the Government wants to support and we want to show our support by having an important contingent of Ministers here tonight to display visually how much we support that Rosie is putting in to this, and that Winston is helping her with.’’
He then went on to say: ‘’ I know you have already been through a lot of hard times, in getting people to realise what the charity means and what the illness is… When I woke up this morning and saw it was raining, I thought it might be a blue day for some but it has turned out to be purple for everyone’’

We would like to thank everyone who attended, donated to and supported the CFFG on what was a very important night for us.
We hope to have enlightened a part of the community about CF, and we will strive to raise awareness in the whole community about this illness; as the Chief Minister said: ‘’you can count on our support whether it is today to launch the charity or in the harder work that will come’’

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-Contact details: Tel: 54008614 Email: cffgib@hotmail.com Facebook: http://www.facebook.com/groups/CFFoundationGibraltar/ Twitter: CFFGIB1

Rosie’s CF Story

 

Rosie with husband Winston

What Is Cystic Fibrosis?

Cystic Fibrosis is a genetic disorder that attacks both the respiratory and digestive systems. Mucus in patients with CF is very thick, and collects in intestines and lungs, this causes difficulty breathing as well as chronic lung infections and scarring; sufferers often compare it to breathing through a straw or drowning.  Most patients will eventually require lung transplantation; unfortunately the lack of donors means that most of them will die before a healthy pair of lungs is available. The mucus in the pancreas and digestive system makes digestion very hard, sometimes blocking the pancreatic ducts completely, therefore causing malnutrition.  Due to this, CF sufferers are required to take an average of 35 pancreatic enzymes every day, to aid digestion and absorption of nutrients. The sweat glands are also affected by this disease, causing sufferers to lose a huge amount of salt when they sweat. This can upset the balance of minerals and can cause abnormal heart rhythms, putting them at risk of going in to shock. Aside from the main aspects of CF, there are also other side effects such as poor growth, premature arthritis/osteoporosis, liver failure, gallstones, reoccurring nasal polyps, infertility (mainly in males)… [Read more…]