A new charity named the ‘’Cystic Fibrosis Foundation Gibraltar’’ has been established in Gibraltar, the charity will have for its main objectives the constant and vigorous campaigning and contact with the Gibraltar Health Authority and all other relevant authorities and organisations in Gibraltar and elsewhere for the attainment, creation, maintenance and supervision of medical and social facilities and conditions of excellence to provide for the treatment and awareness in Gibraltar and elsewhere of those persons and the families affected by Cystic Fibrosis in order to ensure a meaningful and beneficial improvement in their lives and to provide practical and emotional support and information on all matters connected with Cystic Fibrosis.
The CFFG first started in March 2012, 6 months ago as a Facebok group called Cystic Fibrosis Awareness Group which today has over 1,800 members, it was then, after the great response we received from the group members and the community, that we decided to start up the Cystic Fibrosis Foundation Gibraltar, registered charity number 229, formally registered on the 14th of June 2012.
Cystic Fibrosis is a recessive genetic disease for which there is no cure. It affects most critically, but is not limited to, the lungs and digestive system.
CF occurs when the child’s parents are both carriers of the faulty CF gene and the child inherits a copy of the faulty gene from each parent. 1 in 25 people are carriers of the defective CF gene, which means that in Gibraltar there are a potential 1,200 unaware carriers
The Cystic Fibrosis Foundation Gibraltar will be hosting a launch party on the 26th of September 2012, at Boyd’s Nightclub, starting at 19:00.
This launch party has been organized with the aims of raising awareness and also as a reaching out program that the CFFG has, as part of our community awareness in Gibraltar. Many may not know that Cystic Fibrosis is a recessive genetic disease which can have a severe affect within our community.
Admission if free of charge, with complementary snacks on arrival; there will also be a BBQ and bar on consumption.
We will be holding a raffle for a hamper full of goodies, Rosie Fernandez will be giving a brief introduction to Cystic Fibrosis and we will be officially inaugurating the charity with some VIP guests.
The venue has wheelchair access and lifts.
Dress code is casual / something purple (CFFG’s colour)
The more people we can reach out to in the community, the better. This is an open event and everyone is welcome.
More information can be obtained by visiting the Cystic Fibrosis Foundation Gibraltar’s Facebook group , by email firstname.lastname@example.org, via Twitter @CFFGIB1 or by phone on 54008614